Welcome to Cooley's Anemia Foundation Welcome to the home of the Cooley's Anemia Foundation. This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia.
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Written by Craig Butler
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Monday, 08 February 2010 18:54 |
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February 8, 2010 - Q: What is frozen on the outside, warm and cozy on the inside and a big help to CAF? |
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Last Updated ( Monday, 08 February 2010 21:19 )
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Written by Craig Butler
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Friday, 05 February 2010 15:31 |
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February 5, 2010 - A study published online by BioMed Central Blood Disorders investigates the quality of life (QOL) among children with thalassemia in Thailand. |
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Last Updated ( Friday, 05 February 2010 16:11 )
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Written by Craig Butler
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Thursday, 04 February 2010 21:16 |
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February 4, 2010 - Recent stories in the Chinese press have reported that three thalassemia trait carriers are suing a local government agency for denying them jobs due to their trait carrier status. |
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Last Updated ( Monday, 08 February 2010 16:25 )
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Written by Craig Butler
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Thursday, 28 January 2010 18:58 |
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January 27, 2010 - Videos of two presentations from the 9th Cooley's Anemia Symposium are now available for viewing. The subjects are pulmonary hypertension and clinical trials. |
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Last Updated ( Thursday, 28 January 2010 19:39 )
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Written by Craig Butler
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Tuesday, 19 January 2010 19:49 |
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January 19, 2010 - The odds are solidly in your favor that you will have a wonderful time at the Westchester/ Rockland chapter's "Night at the Races" on March 6. |
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Last Updated ( Tuesday, 19 January 2010 19:53 )
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Written by Craig Butler
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Tuesday, 19 January 2010 14:19 |
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January 19, 2010 - Pulmonary hypertension is a complication that occurs in some individuals with thalassemia. (Although it can occur in both thalassemia major and thalassemia intermedia, it is considered by CAF Medical Advisory Board Chair Ellis Neufeld to be a big problem in adults with intermedia and of possible rising significance in adults with major as they age.) Below, CAF speaks with Claudia R. Morris, MD, of Children’s Hospital and Research Center Oakland about pulmonary hypertension and thalassemia and about some current clinical trials in this area. These trials, which include a multi-center Thalassemia Clinical Research Network trial, are ongoing and are currently recruiting subjects. |
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Last Updated ( Friday, 29 January 2010 19:09 )
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Written by Craig Butler
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Tuesday, 19 January 2010 16:14 |
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January 16, 2010 - Several college students who are participating in the Arizona Rock'n'Roll Marathon are using the opportunity to raise funds for the fight against thalassemia. |
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Last Updated ( Tuesday, 19 January 2010 16:31 )
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Written by Craig Butler
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Tuesday, 19 January 2010 15:23 |
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January 19, 2010 - The Suffolk chapter of CAF has two "friend raising" activities coming up soon: a Lunch/Indoor Putting Contest and a Super Bowl Sunday. |
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Last Updated ( Wednesday, 20 January 2010 15:18 )
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Written by Craig Butler
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Thursday, 14 January 2010 14:57 |
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January 13, 2010 - New York State Senator Craig Johnson, the Manhasset-Lakeville Fire Department and the North Lakeville and Lakeville Estates Civic Associations, in collaboration with New York Blood Center, will hold a blood drive on Thursday, January 28, from 2:00-8:00 p.m. at the Manhasset-Lakeville Fire Department, 21 78th Avenue, in New Hyde Park, NY. |
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Last Updated ( Thursday, 14 January 2010 15:14 )
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Written by Craig Butler
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Tuesday, 12 January 2010 15:35 |
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January 12, 2010 - Hearts are already leaping on Valentine's Day, so take things to the next level and Let Your Heart Dance at the Staten Island/New Jersey chapters' aptly-titled "Let Your Heart Dance" fund raiser on February 13. |
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Last Updated ( Tuesday, 19 January 2010 17:27 )
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Written by Craig Butler
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Monday, 30 November 2009 17:04 |
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November 30, 2009 - Read on about how your car donation can help us kiss our children "good night," not "good-bye." |
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Last Updated ( Tuesday, 01 December 2009 17:01 )
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