Our Team & Major Donors

Our Board and Staff

National Office Staff

National Executive Director
Craig Butler

Patient Services Manager
Eileen Scott

Patient Outreach Director
Steve Hemraj

Social Worker
Kathleen Durst

Marketing & Communications Manager
Paris Booker

Finance Manager
Zofia Buczynski

Major Gifts Officer
Amy Sullivan

Office Manager/Finance Assistant
Jonathan Dacuag

Officers

Ralph Colasanti 
President; Executive Committee Chairmen
Financial Services Consultant
Member since 1998

Joseph Vigliotti, Esq.
Vice President; Executive Committee Member; Alternate Representative to TIF
Counsel, Murphy Schiller & Wilkes LLP
Member since 2012

Janet Kwiatkowski, MD, MSCE
Medical Advisory Board Chair; Executive Committee Member
Director of the Thalassemia Program at the Children’s Hospital of Philadelphia
Member since 2017

Teresa Tomaino
Secretary; Executive Committee Member
Chicago Chapter Representative
Member since 2006

Janice Cenzoprano
Treasurer; Executive Committee Member
Office Manager, The Physical Rehabilitation Center
Member since 1998

 

Members

Carmine Abruzzo
General Manager, BMW of Brooklyn
Member since 2002

Tracy Antonelli
Patient/Parent Advocate
Member since 2018

Cammie Brandofino
Executive Committee Member
Benefits Coordinator, Safeharbor Healthcare Svcs.; Ret’d. Admin. Asst. and Constituent Liaison to State Sen. John Marchi
Member since 1985

Amy Celento
Owner/Director, Brain Body Vitality Center
Member since 2001

Julia Cenzoprano
Assurance Manager, EY
Member since 2014

Mary Ann Cervoni-Iaia
Executive Committee Member; Suffolk Chapter Representative
Patient Advocate
Member since 1986

Jennie Chieco
Westchester/Rockland Chapter Representative
Member since 2020

Peter Chieco
Executive Committee Member
Managing Director – Morgan Stanley
Member since 1988

Sarah Baqueri Connolly
Owner, Sir Speedy Plainview, NY
Member since 2018

Terri DiFilippo
Executive Committee Member
NYC Department of Education (Retired)
Member since 1987

Joseph DiTrapani
CEO – Order Sons and Daughters of Italy in America
Member since 2003

Robert Ficarra
Executive Committee Member; Representative to Thalassemia International Federation
Owner, Bob Ficarra Associates
Member since 1975

Josephine Bila Flood, MSW
Producer, CNBC; Wellness Consultant
Member since 2016

Frank Fusaro
President – The Forum Group; Member – Board of Governors Columbus Citizens Foundation
Member since 1995

Anish Goel, PhD
Senior South Asia Fellow – New America
Member since 2016

Maria Hadjidemetriou
Executive Committee Member
Real Estate Sales Agent; Writer for Architecture + Lifestyle
Member since 1995

Dean Hernan
Executive Committee Member
Public Accountant, Katz Viola Lebenhart & Mauro, LLP; Chief Financial Officer, The Forum Group
Member since 2000

Christine Horton
New Jersey Chapter Representative
Freelance Graphic Artist & Creator
Member since 2006

Michelle Chieco Lenz
Westchester/Rockland Chapter Representative
Pediatric RN
Member since 2018

Ben Li
Member since 2020

John Mancino
Queens Chapter Representative
Member since 2024

Valerie Mancino
Member since 2024

Steven Milvid
Member since 2024

Peter Pettinato
UNICO Representative
Member since 2024

William Pisano
Suffolk Chapter Representative
Member since 2020

Laurie Pizzo
Executive Committee Member
Creative Director, MRM
Member since 2020

Paul Polo
Senior Vice President, General Manager, Adchem Manufacturing Technologies, Inc.
Member since 2007

Michael Pouchie
President & COO, National Distribution Alliance, LLC
Member since 2008

Michael Presto
Chairman & CEO, National Distribution Alliance, LLC
Member since 2008

Thomas A. Rotolo
Long Island Chapter Representative
President, Imprenditore OPS
Member since 2001

Phil Rutigliano
Marketing Consultant
Member since 2005

Pranav Saha
Patient Advocate
Director – Booz Allen Hamilton
Member since 2020

Maria Saradpon
California Chapter Representative
Member since 2024

Radhika Sawh
Executive Committee Member
Continental State Teams Lead, NYMAC Regional Genetics Network;
Faculty, Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College
Member since 2020

Joseph Sciame
Vice President for Community Relations, St. John’s University
Member since 1993

Yasmeen Shah
Patient Advocate
Member since 2024

Frank Somma
Executive Committee Member
Keynote Speaker/Sales Trainer
Member since 1986

Joe Tantillo, Jr.
Member since 2024

James Ventola
Executive Committee Member
North Jersey Chapter Representative
Law Enforcement / Government
Member since 2010

Anthony J. Viola, CPA
Senior Partner, Katz Viola Lebenhart & Mauro, LLP
Member since 1995

Tom Watral
Vice President, Watral Brothers, Inc.
Member since 2016

Joseph Zuraw
Sr. Director – Patient Relations, Grifols
Member since 2016

Emeritus Member

Nunzio Cazzetta
Past Board Chairman
Retired Foreign Language Teacher

Honorary Member

Hilary Cooley

Major Donors

We are grateful to all those who donate to The Cooley’s Anemia Foundation. Your generosity helps ensure that we can provide longer and healthier lives for all patients with Thalassemia until a universal cure is found. Every gift counts and we are continually thankful to all our benefactors.

In this section, we want to acknowledge some of our many friends who have provided us with significant funding. We are especially grateful to the following for their major contributions:

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Bristol Myers Squibb

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BWM of Brooklyn

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Columbus Citizens Foundation

 

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Editas Medicine

 

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Haydan Consultants Inc.

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Italian Welfare League

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Milana Family Foundation

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Order Sons and Daughters of Italy in America

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Sam and Lorenza DeMuro Charitable Trust

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UNICO National

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Vertex

The Cooley’s Anemia Foundation Family Thanks You!