Downloadable Brochures on Thalassemia and Its Complications
Downloadable PDF brochures about Thalassemia and various complications associated with the disorder can be accessed by clicking on the links below.
- An Introduction to Beta Thalassemia Intermedia (English, Spanish)
- An Introduction to Beta Thalassemia Major (English, Spanish, Urdu)
- What is Hemoglobin E (English, Bengali, Burmese, Cambodian, Chinese, Hmong, Karen, Laotian, Thai, Vietnamese)
- What is Hemoglobin H (English, Burmese, Cambodian, Chinese, Spanish, Vietnamese, Thai, Hmong, Karen)
- Thalassaemia from ‘A’ to ‘Z’: A Comprehensive e-Glossary for Patients with Thalassaemia Created by the Thalassaemia International Federation (TIF)
- Travel Guidance for Patients & Families Created by the Thalassaemia International Federation (TIF)
- Thalassemia Essay by our thal pal Aiden Singh
- The National Herald interviews Maria Hadjidemetriou & Craig Butler about Thalassemia
- Why Should You Care About Thalassemia? (English, Chinese)
- Have You Been Tested for Alpha Thalassemia Trait? (English, Cambodian, Chinese, French, Hmong, Karen, Spanish, Vietnamese, Haitian Creole, Bengali, Pashto, Farsi, Dari, Rohingya, Thai, Arabic, Portuguese,)
- Have You Been Tested For Beta Thalassemia Trait? (English, Arabic, Bengali, Cambodian, Chinese, Greek, Hindi, Karen, Spanish, Swahili, Thai, Urdu, Vietnamese, Haitian Creole, Bengali, Pashto, Farsi, Dari, Rohingya, Portuguese)
- What is Thalassemia Trait? (English only, English/Chinese (bilingual))
- What Should I Know About Thalassemia? (English, Chinese, Karen)
- Non-Invasive Iron Measurements
- What to Expect When You Go For a MRI for Heart or Liver Iron
- Comprehensive Care Checklist for Thalassemia (Urdu)
- Thalassemia Treatment Centers
- Information on Gene Therapy and Gene Editing
- Gene Therapy in B-Thalassemia
- Bone Marrow Transplantation in B-Thalassemia (TIF Publication)
- Zinc – An Informational Pamphlet for Patients with Thalassemia – created by UCSF Benioff Children’s Hospital Oakland
- Zinc – An Informational Pamphlet for Care Providers of Individuals with Thalassemia – created by UCSF Benioff Children’s Hospital Oakland
- Know Your Numbers!
- She Has Thalassemia and Still Runs Half-Marathons
- You Are Your Child’s Best Advocate
- When Iron Gets Out of Balance
- Being Adherent to Thalassemia Treatment Has a Big Pay-off
- Don’t Wait for Your Heart to Tell You About Iron
- Planning a Trip This Summer?
- Getting Your Child Ready for Back-to-School?
- Flu Season Is Coming
- Flu Season is Here
- Testing for Low Bone Mass Helps Prevent Fractures
- Exercise is Important for Optimal Health
- Pregnancy Health Message
- Temporarily Suspending Chelation During Fever
- Have You Chelated Today?
- It’s Never Too Late to Start Being Physically Active
- Partner with Your Healthcare Team to Take Charge of Your Health
- Keep Calm and Chelate
- Chelation Therapy Gave Me New Life