Navigating life with Thalassemia can bring unique challenges, but it also fosters resilience and strength. Whether you are living with Thalassemia or caring for someone who is, you are not alone. This space is designed to provide you with resources, support, and information to help manage Thalassemia effectively. From understanding treatment options to connecting with others in the community, we are here to empower you on this journey toward better health and well-being. We strive to ensure that all those battling with Thalassemia will get the care and resources they need to continue thriving.
The Cooley’s Anemia Foundation (CAF) is proud to announce a new program to assist U.S. thalassemia patients with fertility and pregnancy issues. A full application form can be accessed by clicking here.
CAF recognizes that individuals with thalassemia may encounter challenges related to fertility and/or pregnancy, often related to thalassemia or its management or to treatments involving bone marrow/stem cell transplantation or gene therapy. In order to provide assistance to meet these challenges, CAF is offering reimbursement of up to $1,000 for approved expenses related to fertility and pregnancy among U.S. thalassemia patients. At this time, this reimbursement may be provided twice during a patient’s lifetime for a total of $2,000. An application for reimbursement may be submitted only once per year between July 1 and June 30.
Rahul Kapoor is a 19 year old college student who is very interested in assisting us. He gets transfused every 3 weeks and will be available on the weekends to help. Rahul with his friends.
Alyssa Altieri is a 25 year old with Thalassemia Major. She’s such a sweet person!!! She’s doing great with the blood disorder. She started getting transfused at the age of 3, diagnosed at 5 months. She is currently working full time at a eye doctor’s office.
Ralph Colasanti a 49 year old Thal Intermediate patient who has had some problems along the way but is doing good right now.
Shelby is 8 years old and she has Beta Thalassemia. She loves seeing her friends with Thalassemia at the CAF conferences.
If you are a person with Thalassemia living in the United States, the Cooley’s Anemia Foundation is your partner in improving your care.
